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Websites -disability



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YOUNG relatives of man whose life was cut short by the rare condition Ondine’s Curse have kept up a family 

Ontario doctors are the first in North America to instsall a pacemaker in a patient suffering from a rare disease that impairs the impulse to breathe

 information/research on Hereditary Angioedema, Ciliopathies:Bardet Biedl, Jo


 Devoted to Raising Children with Special Needs


Producing better 

information for disabled people
A toolkit for local authorities


• SHADA • Sexual Respect Toolkit • Our Research • Leaflets • On PLD • We have a private facebook page for you to communicate







Oldham Society for Blind & Partially Sighted People has been serving the visually impaired people of Oldham since 1878 in various forms. We exist to provide support and advice to those who are registered blind or partially sighted & their family & friends who live in the borough of Oldham.

We are a not for profit organisation registered with the Charity Commission of England.


Since 1984, out & about has led the way in including disabled children and young people in local leisure and sporting activities. 

Being disabled shouldn't be a barrier

 to taking part and having fun at local activities - the ordinary, everyday activities that all children want to enjoy.


As the only UK charity dedicated to improving the diagnosis, prevention and treatment of osteoporosis, we offer a wide range of services to people who are concerned about osteoporosis.  



Positive Choices is a registered Scottish Charity based in Perth. Our aim is to empower individuals living with any long-term health condition to improve the quality of their lives by having access to information


Information on rehabilitation centre for spinal cord injury, stroke, head injury & m.s.
rehabilitation centre for spinal cord injury. Searching for rehabilitation centres? get more information on exercise therapy for spinal cord injury, stroke, head 



You can help find a cure for Parkinson's. It's in our grasp, but we need you to help fund vital research that could bring us even closer – by sponsoring a worm like Dave for £5 a month.

Why should you help? Parkinson's is a progressive neurological condition. It causes stiffness, tremors and slurred speech, making it hard to do things that many people take for granted. But with your support, we can find new ways to treat and prevent it.

Our friend Dave the Worm's playing a crucial part in the search for a cure – but he needs your help. Will you sponsor a worm like him - and help push towards the next major breakthrough?


     Pulmonary hypertension  


A blog devoted to Sharina's thoughts, which she uses to help inspire others to live life to the fullest.

 The PMLD Network is a group of people committed to improving the lives of people with profound and multiple learning disabilities


Rochdale and District Mindwww.rochdalemind.org.uk

Welcome to our organisation. This website is designed to tell you about who we are and what we do and how to get involved. Please note that most of our services are primarily funded only for residents living in the Rochdale.

Brain Diseases: List of Neurological Disorders
Here is a detailed brain diseases list. Neurological diseases affect a sizable portion of people in the US. Those suffering from brain & neurological diseases can have symptoms ranging from seizures and physical affects to erratic behavior and mood swings. What diseases affect the brain? Treatm...


http://www.rareconnect.org         rare connect

Connecting Rare Disease Patients Globally
http://www.rareconnect.org/en/community/ehlers-danlos-syndrome   rare connect
Ehlers-Danlos syndrome (EDS) is a genetic connective tissue disorder characterized by joint hyper mobility, skin hyper extensibility and abnormal wound healing.
Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more 
http://www.rarechromo.co.uk/html/home.asp   Rare Chromo

 Rare Disease UK - the National Alliance for People with Rare Diseases and All Who Support Them

RDUK is campaigning for the Health Departments across the UK to develop a strategy for rare diseases to ensure that 


Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awareness.

 Rett Syndrome Month


NIH Office of Rare Diseases Research (ORDR)
The Office of Rare Diseases Research (ORDR) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and for the rare diseases community. The ORDR Web site provides information for patients and their families w...

Rethink Mental Illness 

National mental health charity: information, services & a strong voice for everyone affected by mental illness - challenging attitudes and changing lives.

 affected by mental illness - challenging attitudes and changing lives.

Mental Health support 

 mental health support, advice & services for people affected by schizophren

National mental health charity: information, services & a strong voice for everyone 

 Rethink Mental Illness

Support and advice for people living with mental illness.
Phone: 0300 5000 927
Website: www.rethink.org
Depression Alliance

Charity for sufferers of depression. Has a network of self-help groups.
Website: www.depressionalliance.org

CALM is the Campaign Against Living Miserably, for men aged 15-35.
Website: www.thecalmzone.net
MDF: the bipolar organisation

A charity helping people living with manic depression or bipolar disorder.
Website: www.mdf.org.uk

 Confidential support for people experiencing feelings of distress or despair. 

Phone: 08457 90 90 90 (24-hour helpline)
Website: www.samaritans.org.uk

Charity offering support and carrying out research into mental illness. 
Phone: 0845 767 8000 (daily, 6pm-11pm)
SANEmail email: sanemail@org.uk
Website: www.sane.org.uk

Promotes the views and needs of people with mental health problems.
Phone: 0300 123 3393
Website: www.mind.org.uk