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Websites  GHIJ



 The RARE List™ is comprised of approximately 7,000 different rare diseases and disorders affecting more than 300 million people worldwide. More RARE Facts™ can be found here. We are often asked why...

  Great Ormond Street Hospital


We raise money to enable Great Ormond Street Hospital to provide world-class care for its young patients and their families and to pioneer new treatments and cures for childhood illness by:

Contributing to the rebuilding and refurbishment of the hospital;

Funding the most up-to-date equipment;

Supporting research into, and development of, breakthrough treatments; and

Providing accommodation and other support services for children and their families


http://www.geniuswithin.co.uk/   Genius within

http://www.geneticalliance.org.uk/routemaptoolkit.htm  Genetic alliance

Genius Within provides specialist dyslexia and dyspraxia training and support.

http://www.rarechromo.co.uk/html/home.asp   Rare Chromo

Disability Charities 

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"Achieving Independant Living"

Registered Charity No. 1061702


 Help for Struggling Readers: 

BEST Websites for Dyslexia & Dysgraphia


 Handicap International UK | Source disability information centre | Source

Online disability and inclusion information centre


HAE is an inherited condition. If a parent has HAE, there is a 50 % chance they will pass it on to their children.

 Hydrocephalus Support | Spina Bifida and Hydrocephalus

You can contact SB&H and know that we will be there to listen and support you through the daily challenges of living with hydrocephalus. We are your source for comfort and understanding, providing emotional support and information.


 Get hemophilia information, resources, and tips for managing your life with hemophilia at 


Action on Hearing Loss

RNID has changed its name! It is now Action on Hearing Loss

Their new website with useful information can be accessed via www.actiononhearingloss.org.uk

Information Line: Telephone 0808 808 0123 (freephone) Textphone 0808 808 9000 (freephone

Email: informationline@hearingloss.org.uk     Address: 19-23 Featherstone Street, London EC1Y 8SL

The Action on Hearing Loss is Britain’s leading charity working with deaf people. The site provides a range of information and links to related parts of the organisation such as Sound Advantage, which can advise on equipment, and has links to regional offices and groups. Action on Hearing Loss also provides a consultancy service including an access audit. The Action on Hearing Loss help people identify whether they have a hearing loss, we campaign for change, we provide services and training, and we actively support scientific and technological research.




Inspire builds online health and wellness communities for patients and caregivers, in partnership with national patient advocacy organizations, and helps life science organizations connect with these highly engaged populations.

My Invisible Disabilities Community (Social Network)

http://www.internationalhivfund.org/   international hiv fund

 INDY (International Network for Disabled Youth) is internet-based global network for young disabled people aged 16-30 to network, skill and knowledge share, created 

 Skills for Care launch website to help personal assistants gain the right skills - In Control

In Control is a national charity. Our mission is to create a fairer society where everyone needing additional support...



Joss Searchlight (Reg. Charity 1141704) was set up after the sad death of Joss Parkes in January 2011. The charity has been formed to provide practical co-ordinated support for families of children suffering from brain tumours. We offer a helpline, advice on NHS Resources, Benefits and Liase with specialists on your behalf. Very importantly we also try to make your childs’  ’Wishes Come True’.  From the simple to the extreme. We are arranging discounted rates with many organisations...


Jubilee Sailing Trust   DISABLED Activity holidays

Not all of us enjoys lazying around on the beach or shopping till we drop. Some are a little more adventurously inclined.

There is quite a few choices if you want to go on an adventure/activity holiday:

Charity that owns and operates two magnificent square rigged sailing ships, fully accessible and taking a mixed crew of both non-disabled and physically disabled people.

Hazel Road, Woolston,

Soton SO19 7GB   023 8044 9108  info@jst.org.uk      www.jst.org.uk

 The Jessie May Trust is a local children's charity based in Bristol | Jessie May nurses care for children and families in Bristol

 www.journeybacktolife.org.uk    Awareness talks on disability, mental health and body image.