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disability websites

 The Maddi's Hope is a non-profit organization whose mission is to share information and communication about Abernethy Malformation. Abernethy Malformation is a rare anomaly of the splanchnic venous system. Mesenteric and splenic venous blood bypasses the liver and drains into the renal veins or

 directly into the inferior vena cava. - See more at:



ABC Ramp Up opinion response... Just for your information and further comment......Please share your thoughts here or on the Ramp Up Opinion page ....

 Action Disability Kensington and Chelsea 

Voluntary organization offers an information and advice service, including assistance with transport-related issues. Action Disability Kensington & Chelsea A Centre for Independent Living, The ADKC Centre, Whitstable House, Silchester Road, London W10
Web: http://www.adkc.org.uk/
Tel: 020 8960 8888
Email: adkc@adkc.org.uk...

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Making Space is a national charity providing quality care and support to people with a wide variety of needs including those with physical and/or mental health conditions, learning disabilities and dementia.  

 Action Disability Youth Project    www.adyp.org.uk


Children and adults with executive function disorder (EFD) have problems with organizing and schedules. They may also have attention deficit hyperactivity disorder (ADD/ADHD) and/or learning disabilities, but not always. ADHD is a common misdiagnosis 


 The AKU Society - An information and support network for people diagnosed with Alkaptonuria


An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources

 ALS Therapy Development Institute


 Learn why ALS TDI is the most advanced research laboratory dedicated to researching ALS (Lou Gehrig's) disease with more than 30 professional scientists focused on finding a cure for ALS.


The ALS Association


Aphasia is a communication disability which occurs when the communication centres of the brain are damaged. It is usually caused by stroke, but can also be caused by a brain haemorrhage, brain tumour, or other neurological condition.


 Asperger Syndrome Behavior

What is typical Asperger Syndrome behavior and how do those with Asperger Syndrome relate to other people such as spouses, siblings and friends?




Ataxia-telangiectasia, or A-T, is a rare genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a high rate of cancer.

What is A-T?

A-T affects a large variety of systems in the body, causing symptoms that affect health and daily living.

- See more at: http://www.atcp.org/page.aspx?pid=3642#sthash.19o2a079.dpuf

 Despite greater awareness and a better understanding  autism rates

  improves Deaf and disabled people's access to live music by working in partnership with venues, 



ATLHA - Leisure Association for the Integration of Disabled

Free time is not a time "vacuum" to be filled, but the moment of choice for the expression of individual identity of each person, disabled or not, to deal with leisure for people with disabilities is not a superfluous, but something necessary because:



Connecting people with accessible places.

The Access2Activities project works with disabled children and young people aged between 5 and 19 years living within the Borough of Telford & Wrekin. The programme aims to provide fun and leisure opportunities for children and young people who may need a little extra help to take part.

The project runs after school clubs at the 3 special schools in Telford as well as planning and delivering activity programmes throughout all of the school holidays. A2A is run by Telford & Wrekin Council.

A2A – Access 2 Activities Project

Website: Access 2 Activities Project

Contact: Mark Taylor (Access2Activities Coordinator)

Email: mark.taylor@telford.gov.uk

Tel: 01952 385115

Mobile: 07800671828


ACT is the independent registered charity for Cambridge University Hospitals (including Addenbrooke's Hospital and the Rosie Hospital). ACT's main aim is to support and promote the work of the hospitals to help make a difference for patients, by raising extra funds to enhance services, facilities and research. 

Many hospitals in the UK rely on fundraising activities to supplement existing publicly funded services.   

Donations received by ACT make a real difference to patients and staff at the hospital. 

They help buy sophisticated equipment that is not readily available through NHS budgets, pay for additional staff, contribute to environmental enhancements and fund research to help improve the understanding of conditions and find possible cures. 


Action against Medical Accidents (AvMA) is the independent charity which promotes better patient safety and justice for people who have been affected by a medical accident in the United Kingdom. A 'medical accident' is where unintended harm has been caused as a result of treatment or failure to treat appropriately. AvMA believes that whatever the cause of a medical accident, the people affected deserve explanations, support, and where appropriate, compensation. Furthermore, that we all deserve to know that the necessary steps will be taken to help prevent similar accidents being repeated. 

AvMA provides free information, advice and support to people affected by medical accidents through a national helpline and written casework service. It works with the Department of Health, health providers and other stakeholders to improve good practice in improving safety and responding to injured patients. It also organises training and conferences to spread awareness and good practice.


The Asthma, Allergy and Inflammation Research Charity (AAIR), is based at Southampton General Hospital and was set up to raise funds for important research into the causes of asthma and allergy. 

Wtih the aim to find effective treatments and cures to help secure a better future for sufferers and reduce the amouth of deaths caused by these conditions. 

Much of our research is dependant on donations. 

We are always happy to welcome people to visit the department, see where the funding goes and meet our world class research team. Ongoing fundraising well enable us to build on these achievements and develop future projects. (less)


The ability to communicate is fundamental to a basic quality of life, yet for many people effective communication is difficult because of a physical impairment, language disorder or learning disability.  We work with people of all ages who face just such challenges. We provide help and expertise in the field of Augmentative and Alternative Communication (AAC) and Assistive Technology (AT).  Our team of therapists, teachers and technicians provide a range of core specialist services including assessments, equipment loans, training and information, as well as undertaking project and consultancy work for local and central statutory services.


Active 8 enables young people with physical disability to do exciting activities, and in the process grow in confidence and independence. It works with 14-25's in Cornwall. 


AMMF (The Alan Morement Memorial Fund) is the UK's only cholangiocarcinoma charity (CC is bile duct cancer). We work to raise awareness, to provide information, and to support research.

Cholangiocarcinoma (CC), also known as bile duct cancer, is a primary liver cancer. Considered a rare cancer, the incidence of CC is increasing year on year and currently we don't know why. Approximately 1,800 people per year in the UK now die from CC - it is very difficult to diagnose and to treat, and only 5% of those receiving a CC diagnosis will be alive one year later. Considering the incidence, awareness levels of CC are low even amongst medics, and there is a great need for further research into this ruthless disease.  As the UK's only cholangiocarcinoma charity, AMMF's current objectives are to raise the awareness of cholangiocarcinoma (bile duct cancer), to support specialised research teams in their work to find the causes, methods of earlier diagnosis and treatments, and to provide information on this disease to those who need it.


ArchClubs - The National Federation of Arch Clubs is the umbrella body in Ireland for 50 friendship.
The National Federation of Arch Clubs is the umbrella body catering for people with special needs

Action for ME and Chronic Fatigue     www.afme.org.uk

information and support to people affected by ME.

Afasic   www.afasic.org.uk

inclusion of children and young adults with speech and language impairments.

Aidis Trust   www.aidis.org

Information, help and support on all aspects of disability computing.

AIDS Education and Research Trust


International charity working to avert HIV and AIDS worldwide.

Arthritis Care   www.arthritiscare.org.uk

Support to people with arthritis.

Arthritis Research UK    www.arthritisresearchuk.org

UK charity fighting against arthritis.

Assist UK   www.assist-uk.org

UK network of local Disabled Living Centres.

Association for Spina Bifida and Hydrocephalus (ASBAH)

www.asbah.org     Support for individuals and families facing spina bifida and hydrocephalus.

http://www.alderhey.nhs.uk/     Alderhey 


 About Allergy UK

 Allergy UK is the leading national charity dedicated to supporting the estimated 21 million allergy sufferers in the UK.  We provide a dedicated helpline, support network and online forum for those with allergy and intolerance.

 We also help and support to educate health care professionals who work with



http://www.autisminitiatives.org/     autism initiatives.

Founded in the early 1970s in the Merseyside region, Autism Initiatives is a parent-led charity and a member of both the Autism Alliance and the Confederation of Service Providers for People with Autism (CoSPPA).

Mission Statement

Autism Initiatives UK mission is to meet the needs of people with autism, their families and carers by providing a range of services which are personal, professional and innovative.


Autism Initiatives UK provides a range of person centred services throughout the UK. The charity provides services to children and adults, and encompasses educationresidential housessupported living and outreach services.


Founded in the early 1970s in the Merseyside region, Autism Initiatives is a parent-led charity and a member of both the Autism Alliance and the Confederation of Service Providers for People with Autism (CoSPPA).

Mission Statement

Autism Initiatives UK mission is to meet the needs of people with autism, their families and carers by providing a range of services which are personal, professional and innovative.


The Autumn Group is a registered charity- 1146731- that focuses on supporting families caring for children and adults affected by Autism who live in Greater Manchester.

We provide advice, signposting, referrals, information but more importantly empathetic and emotional support


If you are looking for services for individuals with autism (a residential care setting, some in-home help, or a therapist) Living Autism can help. This website provides you with the opportunity to share information, experiences and advice. Please visit our Discussion Forum and have a look at the Autism Advice section.




Alzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.

Many of our 25,000 members have personal experience of dementia, as carers, health professionals or people with dementia themselves, and their experiences help to inform our work.

Action for children


My Action for Children is simply the quickest and easiest way for you to help the UK’s most vulnerable and neglected children and young people. In just three easy steps, you can give a child or young person anywhere in the UK the chance of a better future.

Action for kids


Our vision is a world where all disabled young people and their families receive the support and advice they need, when they need it, for as long as they need it.

Our mission is to help physically and mentally disabled children and young people find greater levels of independence and opportunity through the provision of appropriate aid and support.

We achieve this through our programme of services entitled Towards Independence.

Action for Advocacy (A4A) is the central point of information on independent advocacy. Established in 2001, we work in England and Wales. We have built a reputation as the leading authority on the development of effective advocacy services for vulnerable and disempowered people.

Action for Advocacy (A4A) has produced a range of publications to raise awareness of, and support the development and delivery of effective advocacy.  Services include:

Website: http://www.actionforadvocacy.org.uk/index.jsp      Email: info@actionforadvocacy.org.uk

Tel: 020 7820 7868      Address: Action for Advocacy, PO Box 31856, Lorrimore Square, London SE17 3XR

Planet Advocacy MagazineA4A Training & Events

Capacity Building:  a4A provide a range of support for advocacy schemes including information and resources, responding to telephone queries about organisational development and one-to-one support through their Standards Support Project.

A monthly email bulletin includes latest news affecting the advocacy sector and latest training opportunities. It is free and easy to subscribe, and just as easy to unsubscribe.

Action for Advocacy (A4A) regularly responds to consultations on aspects of government policy which have implications for advocacy services and the people who use them. By doing this we aim to encourage a greater understanding of advocacy within government and promote increased opportunities for people to access advocacy and for the sector to develop.

QPM:  The Quality Performance Mark (QPM) is the only national advocacy specific quality assessment system which applies to all forms of one to one advocacy.

Affinity Trust


At Affinity Trust we offer high quality support to over 700 adults with learning disabilities throughout England and Scotland. We help individuals live as independently as possible by providing tailored support to meet their aspirations and goals in life.

Whether you require help with supported living, access to employment, recreational or social opportunities, read on to find out how we can support 


 Asthma UK. Lots of useful information.


Action on Hearing Loss

RNID has changed its name! It is now Action on Hearing Loss

Their new website with useful information can be accessed via www.actiononhearingloss.org.uk

Information Line: Telephone 0808 808 0123 (freephone) Textphone 0808 808 9000 (freephone

Email: informationline@hearingloss.org.uk     Address: 19-23 Featherstone Street, London EC1Y 8SL

The Action on Hearing Loss is Britain’s leading charity working with deaf people. The site provides a range of information and links to related parts of the organisation such as Sound Advantage, which can advise on equipment, and has links to regional offices and groups. Action on Hearing Loss also provides a consultancy service including an access audit.

The Action on Hearing Loss help people identify whether they have a hearing loss, we campaign for change, we provide services and training, and we actively support scientific and technological research.


Ability's Aim's 

The Ability Project aim is to show that quality of life is related to how free a person is to make their own choices and for a significant number of disabled people computer technology and the Internet holds the keys to those choices.

To demonstrate to employers and the public that IT and the Internet are tools for equality in the workplace.

Too many valuable skills are overlooked and wasted, employers and the public should "see the ability not the disability".

To work with the computer industry to show them that everyone can benefit when access for people with disabilities is considered in product design.

To identify shortfalls in the general provision of computer equipment, software and services on the information super highway for people with disabilities and then initiate projects to correct and overcome such situations.

To encourage the active involvement of people with disabilities in the workings of Ability, and seek their feedback and support so that they can have a direct input into decisions which affect them.

Ability understands that, despite the daunting task many disabled persons and disabled groups etc. face when using the Internet as a means of obtaining information or down loading related software, it is still the preferred place to find information.


A resource for disabled people & their carers to share information, ask or give 

advice & influence design & technology to


advice & influence design & technology to improve lives


A resource for disabled people & their carers to share information, ask or give 

advice & influence design & technology to improve lives


 Breathing Room: The Art of Living with Cystic Fibrosis

Breathing Room facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.


The British Cardiac Patients Association is the independent voice of the patient and carer. We also provide support for patients, carers and their families who are in any way touched by Coronary Heart Disease


Disabled Persons' Organizations and Resource Groups
ILO Global Business and Disability Network

 Special needs disability parenting BLOOM


Holland Bloorview Kids Rehabilitation Hospital created BLOOM Blog to bring together the wisdom of families and professionals in childhood disability.

 Barth Syndrome Information Page: National Institute of Neurological Disorders and Stroke (NINDS)


 The Barth Syndrome Foundation, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world. As our mission 

 Barth Syndrome Foundation - Home


 http://www.birthdefects.org/Who We Are

Birth Defect Research for Children, Inc. (BDRC) is a 501(c)(3) non-profit organization that provides parents and expectant parents with information about birth defects and support services for their children. BDRC has a parent-matching program that links families who have children with similar birth defects. BDRC also sponsors the National Birth Defect Registry, a research project that studies associations between birth defects and expos...


BBC - Search results for Disability


Blood problems

The Bendrigg Trust runs high quality courses for disabled and disadvantaged people.

We aim to promote integration, encourage independence and build self-confidence through the use of residential experience and the safe provision of adventurous activities delivered by dedicated, qualified staff.


British Deaf Association

Website: www.bda.org.uk

Email: england@bda.org.uk

Address: British Deaf Association, Bushell Street Mill, Bushell Street, Preston, Lancashire PR1 2SP

The BDA aims to develop pride, identity and awareness of the rights and responsibilities of deaf people. The BDA wants to see a society where Sign Language users have the same rights, responsibilities, opportunities and quality of life as everyone else. They also work to gain the right for all Deaf children to receive bilingual education, using BSL and English, and the right to quality and choice in education.

Back-up Trust

A national, registered charity that run outdoor activity courses for people who have become paralyzed through spinal cord injury.

The Business Village, Broomhill Road, Wandsworth, London SW18 4JQ

020 8875 1805   Admin@backuptrust.org.uk        www.backuptrust.org.uk

 Bendrigg      http://www.bendrigg.org.uk/     Noonans

Blind & Partially sighted.

RNIB - supporting blind and partially sighted people - RNIB

RNIB offers support and advice to blind and partially sighted people in the UK, helping people who have lost their sight to find their lives again.

Guide Dogs UK Charity for the Blind and Partially Sighted

Formally called The Guide Dogs for the Blind Association, Guide Dogs provides mobility for people who are blind and partially sighted. It supports research as ...



Oldham Society for Blind & Partially Sighted People has been serving the visually impaired people of Oldham since 1878 in various forms. We exist to provide support and advice to those who are registered blind or partially sighted & their family & friends who live in the borough of Oldham.

We are a not for profit organisation registered with the Charity Commission of England.

Brain injury hub

This information resource was conceived as a way of sharing the expertise at the Trust with a wider audience.

It was made possible only through voluntary donations, and the feedback and support of parents of children with acquired brain injury.    http://www.braininjuryhub.co.uk/

British Thoracic SocietyGood for research and guidelines.





Battens Disease is a rare neuro-degenerative condition that affects babies, young children and juveniles. It is always fatal.

We want to change that. We want to try to save those affected and to find a cure for future generations. To do that, we need your help. Find out more...

When Tony and Mary Heffernan's daughter Saoirse was diagnosed with Battens Disease, there was simply no-one in Ireland who could provide the information and support they needed.

When they made contact with the Battens Disease Research & Support Association (USA) and the Battens Disease Family Association (UK), information started to flow, including contact with other affected families in the UK and Ireland.

In March 2010, the Heffernan family received more bad news when they found out that their other child, Liam, was also diagnosed with Battens Disease.

Tony and Mary decided to set up the Saoirse Foundation to provide parents, families and all those affected by Battens Disease on the island of Ireland with a support, networking, and a credible source of information. The Charity also became a member of a new global initiative between Patient Support & Research organization's worldwide.

Breaking Through with You


Specialist counselling service for disabled people, particularly those with speech and communication difficulties.

British Dyslexia Association


BDA provides support to dyslexic people.

British Epilepsy Association


Support for those whose lives are affected by epilepsy.

British Heart Foundation


Researches heart disease and provides support for those affected by it.

British Institute for Brain Injured Children (BIBIC)


Support for families caring for disabled children.

British Institute of Learning Disabilities (BILD)


Support for people with learning disabilities and family carers.

British Liver Trust


Support, information and research for those affected by liver disease.

Brittle Bone Society


Support for those affected by Osteogenesis Imperfecta (OI).


Click on the gold donate button on the right to make a secure online single donation using your credit or debit card.Alternatively choose one of the buttons below:


Add your Website here. 

 Cri du Chat Syndrome Support Group homepage, with information, links, and news from the group


CICS Group offers support for parents of deaf children who want information about cochlear implants.

 We’re a parent to parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children. But most of all we provide a su...

 K charity number 1085605  costellokids.com

 Every day 6,000 people take on new caring responsibilities in the UK. During Carers Week we will share some of these stories. Thank you to all the carers...

 A blog about caring for my mother who has vascular dementia. Its also about matt black vehicles, dogs with wheels, cooking, arranging things alphabetically, caravans, st...

 Disability Advice And Information Network Limited | Care For Carers - Family Charities | Charity...


Charity Choice list of charities includes Disability Advice And Information Network Limited and other Care For Carers 

 Dept of Health: Consistency within the NHS when diagnosing an autism spectrum condition

Criptaedo is my creation. I have been studying Karate for over four years and became the first person born with a disability to earn a “Black Belt” from” The Art of Karate” On February 16, 2013. I focus on health and fitness for adults & children who are living with physical disabilities.
Criptaedo is my creation. I have been studying Karate for over four years and became the first person born with a disability to earn a “Black Belt” from” The Art of Karate” On February 16, 2013. I focus on health and fitness for adults & children who are living with physical disabilities. I also...

Public Figure: 1,525 like this. 

Childhood Strokes. 

Scheuermann's Disease

Scheuermann's Disease

Scheuermann’s disease, also know as adolescent kyphosis, is a condition related to the curvature of the spine. While the normal curvature of the thoracic, or upper, spine is between 20 and 50 degrees, a curvature of more than 50 degrees constitutes Scheuermann’s disease. During its…



Carers advice/support.


Cerebral Palsy Plus is a Bristol based charity working with children and adults with Cerebral Palsy, their families and their carers. Our aim is to support our members so that no matter what their circumstances or needs, they can live as independently as they wish,  living life to the full!

Our services are free of charge to anyone with Cerebral Palsy who is a member, living in Bristol and the surrounding area. Membership is free and all of our services have been designed to meet the emotional and practical needs of members by offering companionship, support and encouragement.


The London Centre for Children with Cerebral Palsy aims to inspire children with cerebral palsy to develop independence, confidence and self-esteem and to achieve their full potential. It will strive towards its vision by developing and maintaining a reputation as a centre of excellence which delivers high quality, pioneering, specialist education services to children with cerebral palsy and their families from across the London region.

The carers network


Disabled parent network



Council for disabled children


The Council for Disabled Children (CDC) is the umbrella body for the disabled children's

sector in England, with links to other UK nations. We are the only national body that

brings together the diverse range of organisations that work with and for disabled children to

support the development and implementation of policy and practice.  Our work impacts on over

800,000 disabled children and their families 


Contact a family. The only UK wide charity providing advice, information and support to the parents of all disabled children no matter what their disability or health condition.

Children's Group

Restorative therapies



KIDS is the national charity working with disabled children, young people and their families across England.

KIDS' vision is a world in which all disabled children and young people realise their aspirations and their right to an inclusive community which supports them and their families.

You can read more about our historical milestones and learn more about the services we provide and what they mean to everyone we work for. Want to find a service in your local area?

Action for children


My Action for Children is simply the quickest and easiest way for you to help the UK’s most vulnerable and neglected children and young people. In just three easy steps, you can give a child or young person anywhere in the UK the chance of a better life

Whizz Kids


Great Ormond Street Hospital


We raise money to enable Great Ormond Street Hospital to provide world-class care for its young patients and their families and to pioneer new treatments and cures for childhood illness by:

Contributing to the rebuilding and refurbishment of the hospital;

Funding the most up-to-date equipment;

Supporting research into, and development of, breakthrough treatments; and

Providing accommodation and other support services for children and their families



Me, Myself, and I

YCNet is a place for young carers. 

If you’re 18 or under and help to look after someone in your family with an illness, disability, addiction or mental health condition, come over and join us!

YCNet is part of Bebo Be Well which gives you access to independent, expert advice from support organisation 


Patients Connect is an online community of people to give and receive support with others fighting disease. Join for free today and connect with other patients battling the same fight as you.


Coats' disease is also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis. There is some evidence to suggest that Coats' Disease is caused by a somatic mutation of the NDP gene. (Norrie Disease Protein). You can search this link ( http://www.sph.uth.tmc.edu/Retnet/disease.htm ) for "NDP", to find the gene loaction.  Coats’ disease is a very rare  condition where there is abnormal development in the blood vessels behind the retina. The blood rich retinal capillaries break open, leaking the serum portion of the blood into the back of eye. The leakage causes the retina to swell, and can cause partial or complete detachment of the retina. Coats' disease is seen predominantly in males, about 69 percent of the cases. It progresses gradually and affects central vision. It is almost always unilateral (affects only one eye). If caught early, some level of vision can typically be restored. If not caught until it's late stages, complete loss of vision can occur. In it's final stages, enucleation (removal of the affected eye) is a potential outcome.

Tel: 01772 259725

Textphone: 05603 115295


Registered Charity Number: 1089812
Page: 4,665 like this.


Our charity, Connect 2 Colour Community Fund will enable us to provide workshops for special needs children and adults, and other charities in the local community.

 congenital central hypoventilation


 What I Want the World to Know
My name is Charisse and I have Cerebral Palsy and Ataxia. This video is different from my other videos but I made this video to spread more awareness 


Sara’s Story: Disabled; Asthmatic; and, Being kicked out of her own home. | Chronic Lung Alliance -.

 Sara’s Story: Disabled; Asthmatic; and, Being kicked out of her own home. | Chronic Lung Alliance -.In my travels through the world of Social Media COPD support groups, I have had the good fortune of meeting Sara, the author of this guest blog. If I am not mistaken, she fell prey to my sense of humor when she joined the 


Compass Disability Services enable disabled people to access services, 

 This Web Site © Copyright, Contact a Family 2012 Contact a Family, 209-211 City Road, London EC1V 1JN Tel: 020 7608 8700

 A service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institutes of Health (NIH)


Children with Diabetes is the online community for parents, kids, adults, and families living with type 1 diabetes.


Compatible Companions is an online community which offers the opportunity for people with disabilities to share, connect and just be heard....

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